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Hemophilia Emergency Preparedness

Living with a bleeding disorder like hemophilia requires vigilance and planning. An injury or accident can strike at any time, and so it is important to pre-plan for these potential crises well in advance. Planning ahead will save valuable time and help you stay focused on getting you or your relative the help they need.

The following recommendations are not intended to be a substitute for consulting with a medical professional, but it can help you manage your emergencies.

 

Medical Identification

Individuals suffering from bleeding disorders should always carry some form of medical identification that clearly indicates they suffer from a bleeding disorder.

Medical alert services like MedicAlert and the smartphone app ICE can quickly and easily alert first responders quickly to you or a relative’s condition. 

Medical Information

In the event of an accident or injury it is important to keep your medical provider and or hemophilia treatment center information easily accessible and/or visible. Some options include laminated wallet cards with your center, physician and condition listed clearly.

Personal Health Report

The American Thrombosis & Hemostasis Network (ATHN) is a non-profit organization that partners with over 130 hemophilia treatment centers. One of the services they that is recommended by the Hemophilia Federation of America is a pocket-sized flash drive that stores personal health information.

Learn more a www.athn.org